We’re overhauling the ACEsConnection Resources Center. Want to help?

Thank you all for your feedback. This is all very helpful.

Something I read in the lower comments reminded me of the Texas ACE sequel study [of 6,600 people; not all of whom had health insurance], reported in the April 2010 issue of Preventing Chronic Disease journal.

I concur with Dr. Felitti about having a category addressing Primary Prevention. I think that initiatives like Peace4Tarpon, Kansas City, and other Trauma-Informed community initiatives and Funding Sources for such initiatives will help too. I also agree with Tina about Rural Areas (which in many cases have less anonymity than Urban areas-hence a potential Resilience source), and I hope our members in Rural Maine will add to this resource. Perhaps outside of northern New England, where the 'smallest unit of government in rural areas is often the county-rather than the "town", we can avail ourselves of the initiative in Florida-where the county health officer and sheriff compared overlay maps of their high volume responses-and talked with each other about the similarities. Perhaps a follow-up on the Troy, N.Y. Housing Authority ACE initiative, and exploring what Rural Housing Authorities might avail in a similar fashion [does Heather have any follow-up data?]. I may add to this later, or do a separate post. I appreciate all the comments which have contributed resources to this initiative.

Attachments available until Jul 7, 2016
Here is the Bibliography of the ACE Study. At its end are references to documentaries and books, as well. A few general articles are also attached, including about Obesity, which is where all this began.

Click to Download
<https://www.icloud.com/attachm...5.docx&sz=163945>ACE publications, 2015.docx
164 KB
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<https://www.icloud.com/attachm...20.pdf&sz=322718>ChadwickChapter10 .pdf
323 KB
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<https://www.icloud.com/attachm....pdf&sz=28855927>LANIUS copy.pdf
28.9 MB
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<https://www.icloud.com/attachm...py.pdf&sz=232027>Addiction, Germany 2003 copy.pdf
232 KB

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<https://www.icloud.com/attachm...20.pdf&sz=193401>ACE Study-Gold into Lead .pdf
193 KB
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<https://www.icloud.com/attachm...PJ.pdf&sz=192416>Obesity article TPJ.pdf
192 KB
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<https://www.icloud.com/attachm...opy.pdf&sz=54470>100 pounds article TPJ copy.pdf
54 KB
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<https://www.icloud.com/attachm...or.pdf&sz=144607>Dear Doctor.pdf
145 KB
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<https://www.icloud.com/attachm....pdf&sz=69010914>WisconsinACE results.pdf
69 MB



VINCENT J. FELITTI, MD
San Diego, California
VJFMDSDCA@mac.com <mailto:VJFMDSDCA@mac.com>





> On Jun 7, 2016, at 4:37 PMPDT, ACEsConnection <communitymanager@acesconnection.com <mailto:communitymanager@acesconnection.com>> wrote:
>

I want resources and articles and ways to affect aces in rural poverty.  I have to see the most horrific things in pediatrics everyday in rural america associated with rural poverty and no one cares.   I am a member of the MI AAP developmental peds team and the team lead told me when I asked about rural poverty ---- well we work with traverse city... Traverse city is one of the richest (resort) areas in Michigan.   

 

That isn't rural poverty.  1/2 of america lives in rural areas and most of us are incredibly poor and no one gives a darn.   

(Go Cali PLEASE for Bernie - which does not diminish my statement because Bernie is the only one who cares about the poor --- do you know one of his first efforts in the House was for dental care --- I cannot tell you how bad teeth are in rural areas and that starts with kids baby teeth.  I have seen so many cases of baby bottle rot.   There is so much indifference for here.)

I would find it really helpful to have the references and abstracts of professional papers that relate to adverse childhood experiences including those that use the ACES data. It's fine to have the human interest stories but some of us need the chapter and verse of the peer-reviewed articles and books to be able to influence government and practitioners. Thank you.

What you’re saying is absolutely correct. The difference is whether one’s focus is one person at a time or a population.



VINCENT J. FELITTI, MD
San Diego, California
VJFMDSDCA@mac.com





> On Jun 7, 2016, at 2:18 PMPDT, ACEsConnection <communitymanager@acesconnection.com> wrote:
>

Vincent J. Felitti, MD posted:

What a terrific idea!  Congratulations, Jane!!  One additional category might be about Primary Prevention - how to prevent these problems from occurring in the first place, rather than attempting the very difficult problem of dealing with them afterwards.  No one knows how to do primary prevention, but it is the right problem to focus on.  One suspects it would involve figuring out how to improve parenting skills across the entire population - tens of millions of people.  

Dr. Felitti:

Maybe there's some sort of positive or reserve epigenetic impact where the healing of individuals with high ACEs helps future generations too?

Maybe by treating those with high ACEs, though it's hard, we are also working on prevention at the same time. 

So many of us with high ACEs are often still in families, communities and systems with others with high ACEs. Wouldn't it be great it we were not only getting healing, health and relief ourselves but addressing bigger social issues at the same time to make it easier for future generations? 

I like to at least the impact goes beyond individual and personal benefit and that by healing the health of future generations improves. Though, prevention would certainly be ideal!  

Cissy

 

 

Thank you for the incredible work you do! Of all the work emails I get each day, I look forward to these the most. 

I think it could be beneficial to include a resource on careers, employment or jobs. Maybe even volunteering or interning possibilities? 

Thanks again!

Jane,

Thanks for your leadership.  Following are my input about your questions: 

• Do you think this basic plan is a good idea? If not, why not? 
  
  • Yes.  I respect that you would also include the Philadelphia study. 
• What else would you like to see in the basic Resource Center? 
  • An identified list of currently existing resources on Anti-racism training(s)
  • Also, is there a way to identify resources based on their impact/take-away such as Theoretical, Capacity Building...similar to the blog/post "tags" but with a finite and encompassing list of options?  I am thinking of ways to make it easier to find a resource based on it's primary and then secondary population, topic, and impact for the advocate and/or survivor.
  • An introduction of resources related  to a "public health approach" to ACEs work.  Building capacity to recognize and engage in primordial prevention, secondary prevention, and tertiary prevention within the ACEs grounding philosophy.  Perhaps videos, PowerPoint presentations at the general "public health approach", levels of prevention, and ACEs in general and areas specific to the extended ACEs pyramids. 
  • I would like to see the entire community embrace the extended ACEs pyramid that includes racism as a social context/historical trauma and use the extended pyramid exclusively.

• What other interest-based groups would you like to see on ACEsConnection? (Here's a list of all the groups.)
  • I would appreciate an interest-based group or other group that centers racial oppression and marginalization.  I think such a group has potential to harness our diverse ways of thinking to build survivor and ally capacity to engage in fruitful conversation and develop transformative action plans within the ACEs framework. 

 

 

 

What a terrific idea!  Congratulations, Jane!!  One additional category might be about Primary Prevention - how to prevent these problems from occurring in the first place, rather than attempting the very difficult problem of dealing with them afterwards.  No one knows how to do primary prevention, but it is the right problem to focus on.  One suspects it would involve figuring out how to improve parenting skills across the entire population - tens of millions of people.  

Great ideas, Jane! I look forward to accessing the resources under these new headings.

Comments:

• Do you think this basic plan is a good idea? If not, why not?

In general I am still not clear on the difference between the ACES connection online community and the news feed and the other stuff. I have been trying really hard to understand the branding differences and not getting there. As far as I can tell, all of the resources mentioned are already available on the members only site, so now you are just making that same stuff public? Making stuff public is usually a good idea.

• What else would you like to see in the basic Resource Center? 

Presentations on resilience that AREN'T about trauma neurobiology. A review of these 140 survivor led programs. https://www.psychologytoday.co...inking-mental-health. Info on how to directly challenge the disease model of mental health. Information on safe psych med tapering. All the resources linked on madinamerica.com.  Info on how and why to connect with the Recovery Movement (found on power2u.org). The PCORI patient / advocate engagement rubric and how your resilience project can use that to assess decent engagement plans. The Mind UK Community Resilience Report. Poetry for Personal Power's Resilience Impact Quiz.  http://poetryforpersonalpower....mpact-assement-form/

• What other interest-based groups would you like to see on ACEsConnection? (Here's a list of all the groups.)

 

Not sure at this time. This forum hasn't seemed active enough to me to split it up into sub sections. 

Jane:

I'm so grateful that you do this work. My answers to your questions below.

• Do you think this basic plan is a good idea? If not, why not?
  • Yes. The way you have described it would make the resources easier to find, use, study, explore and maybe even add to.
• What else would you like to see in the basic Resource Center?
• What other interest-based groups would you like to see on ACEsConnection?
  • My answers to both of these questions are the same. I'm not sure where this would fit in those. Maybe in one place. Maybe in both.
    • How to Advocate for Your Own Health if you live in a high ACE adult body and a world that doesn't yet know what the heck that means.
      • What health issues are real threats and what can be done? What resources do work and which ones do not?
  • You wrote "Trauma-informed/resilience-building learning communities or in-person training;" and I'd like to see that very much.
    • I request a sub-group with a "Practice Safety/Practice Joy" or a "High ACE Score Support Group" where skills can be shared several times a week for people to actually try.
      • Guided imagery.
      • Breath work.
      • Marinating in the good.
      • Writing exercises.
      • Video or audio, online or whatever format.
      • In my time within this community, the personal emails I get are with others looking for more to do in the now, to improve our health or our parenting. with some daily practice of guided imagery, breath work, re-frame, marinating in the good, learning what the heck self-care is and what it's hard for us and having a lab for doing the strengthening.
        • While this would benefit the members in the group I think it's also important for the wider community to be able to share approaches that work for people in daily lives that don't necessarily require an expert or therapy or insurance. Skills for self-soothing and self-awareness. Ways to attach and connect with self which also improve relationships. Boundary basics.
          • When I give presentations about ACEs as a trauma survivor, the question always is, "What can we do now?" Because, that's the question when prevention is too late. I'd like for this to be included in conversations about ACEs more.
            • The answers I think, still revolve around learning what one might have learned in the absence of ACEs. Safety in our skin, in our relationships, in the world. Safety in our psyche.
•  Finally, continuing the excellent profiles and pieces that are done already but including, at the end of every single one, the personal or professional tools and skills used most, most beneficial, that individuals see working well. We just can't hear or learn about this enough.
  

I am so grateful for the work being done here - led by you Jane - but involving everyone. It's astounding and important and unifying.

Where else can individuals, subject matter experts, social policy change makers and survivors of all kinds join in conversations, brainstorming and solutions? It's like nothing I've seen and is incredibly inspiring - albeit daunting at times.

Finally, I affirm adding more so that we don't alienate people who feel that the ACEs are talking to and about mostly middle-class white people. While the original study is ground-breaking and has changed lives, including my own, I think some can take it to mean that poverty, racism and lots of other systemic and other types of adversity are not well considered enough. And that is too bad because many doing work to address poverty, racism and adversity are doing much of the same social justice, human rights and dealing with present-day issues for adults and children now. I know you already know this but it's something I realize more and more as I look at and think about ACEs.

I myself had a homeless father and class and money issues had a big part in shaping how I experienced the ACEs I grew up with. And when my class status change due to my mother's third marriage, my life improved in many ways even though I still had the same ACE score. I rarely think about class and poverty when I think about ACEs but that has a lot to do with the neglect and scarcity me and my providers felt and why they maybe couldn't do more for themselves or for their children even when they felt love. So finding ways to make sure that there's a context ACEs happen within and that there are types of adversity that still profoundly impact lives even if ACE scores are lower.

Cissy

 

 

 

 

This sounds great!  These are things I have been looking for and researching. It will be nice to have it all in one place!  Thanks for all you doing