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What other ACE surveys have additional questions?  We know of seven.

 

We’ll start to populate the new Resource Center next month. One of the sections lists ACE surveys that have additional questions. 

The CDC-Kaiser Permanente Adverse Childhood Experiences Study revealed that ACEs contribute to most of our major chronic health, mental health, economic health and social health issues. 

It measured five types of abuse and neglect: physical, verbal and sexual abuse; physical and emotional neglect. And five types of family dysfunction: a family member with mental illness, or who has been incarcerated, or is abusing alcohol or other drugs; witnessing a mother being abused; losing a parent to divorce or separation.

Of course, there are other types of childhood trauma, and there are ACE surveys that include other types of trauma, based on the experiences of the population surveyed. These other types include racism, bullying, witnessing a sibling being abused, witnessing violence outside the home, living in an unsafe neighborhood, experiences unique to being an immigrant (such as losing a parent to deportation), and involvement with the foster care system.  

So far, we know of seven ACE surveys that have additional questions. We're searching for more. If you know of others, please leave a comment so that we’ll have a list that's as complete as possible:

1. The Philadelphia Urban ACE Study added five other ACEs — witnessing violence other than a mother being abused, experiencing discrimination based on race or ethnicity, feeling unsafe in your neighborhood or not trusting your neighbors, bullying and ever in foster care;

2. Children's Clinic pediatrician The ACE survey used by the Children's Clinic in Portland, OR (but I just heard that Dr. RJ Gillespie, who's managing the project has changed the additional questions, so I'll look into that);

3. Center for Youth Wellness ACE surveys (Dr. Nadine Burke Harris), which add six additional questions; 

4. The Roseland Clinic in Santa Rosa (I don’t have a link to their survey yet);

5. The World Health Organization ACE questionnaire; 

6. The Family Center's ACE survey, which asks the 10 questions in different ways, to accommodate to the language used by the people who take its survey to describe particular types of trauma; 

7. Elsie Allen Health Center's survey, which asks six additional questions.

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The National Survey of Children's Health added questions on "Adverse Family Experiences" to the last survey (2011/12) and is asking them again during the next survey (2016/17): http://childhealthdata.org/learn/NSCH. To see them and explore the data, go to http://childhealthdata.org/browse/survey, choose the National Survey of Children's Health, year 2011/12, and then click on Parental Health (survey section 9) within the Survey Sections option.

Jane (and other readers). It may help to include the World Health Organization's "Users Guide" to their ACE International Questionaire.

I came upon a two year old comment reccently, regarding what was being done in Vermont-when their legislature was addressing House Bill 762 [requiring ALL Vermont health care providers to screen all patients, regardless of age, for ACEs], and concern was raised about triggering adverse reactions due to the questions. I added a supplementary note to it, so it may be traceable by review of [my] recent entries.

Obviously, when working with patients, what we are really getting after is the degree of toxic stress exposure, which can very well predict outcome severity - mild depression versus the phenotype of borderline personality as an example. 

The ACE study is awesome because it is so simple to explain to anyone, but I feel that folks need the additional information of the brain science that lets them know - what they are experiencing is normal and how by developing healthy relationships, they can develop personal resilience to overcome the negative experiences of childhood. 

For many of us, those experiences were brutal and knowing we are not

Crazy

Bad

Flawed

A genetic misfit

A drug addict (or some other socially derogatory term) is incredibly powerful.....

Just my few thoughts.  

thanks

Jonathan asks "What does BRFSS stand for?".   It is CDC's Brief Risk Factor Surveillance System. Many states have included an ACEs module which asks ACEs questiions during their BRFSS data collection You can find information about BRFSS here: http://www.cdc.gov/brfss/

I will also be posting a blog with an example of a Youth Behavioral Risk survey (YBRS), implemented in school sites,  that included ACEs questions, from NY. They actually analyzed ACEs score by different behavioral and academic indicators.  Check it out in the ACEs and Education group!

While it feels compelling to add other questions to the questionnaire please be cautious in calling this an ACE questionnaire or ACE score. Even though not copy righted, the term ACEs refers to the original research. If you add questions you can compare your results to the original ACE research results nor the BRFSS results. One of the critical factors of the ACE research is the rigor and quality. To use the same language when referring to other issues/questions will at the least mislead people and has the potential to dilute the impact of the work.

I would very interested in seeing how rates of suspension and explusion vary relative to its ACEs data.  I also know that at least the explusion data may not give a complete picture due to the fact that virtually all of the children I served in an alternative school last year had been given suspended/conditional expulsions. 

What does BRFSS stand for?

Jonathan Williams, Easton

Maryland is supposed to be releasing it's ACE data collected starting in January, 2015 on 50% of its BRFSSs.  I have not seen the questions asked.  I hope all of this data and information will be made available through the CDC when it releases the information in July, 2016.  I'm hoping for a HUGE impact on the way Maryland views and relates to its population.

Brenda Yuen

In our community (as is true in many others, I'm sure) there is quite a bit of trauma experienced by immigrant children (and adults) who have gone through extended detention and/or deportation of a parent or other family member, and especially when they were a witness to an ICE "pick-up"/arrest. This causes ongoing and collateral fear and pain in the overall immigrant community.

There needs to be a question about medical harm or fear of doctors. "Did you feel harmed by a medical provider, or do you avoid seeking help because of disrespectful treatment by medical providers in the past?"

For the Dutch ACE Questionnaire, see: Kuiper, Rebecca M.; Elise Dusseldorp; Antonius G.C. Vogels, A first hypothetical estimate of the Dutch burden of disease in relation to negative experiences during childhood [ACEs], TNO Quality of Life, TNO report, Leiden: TNO, 2010 (Dutch ACE Questionnaire in Appendices), http://repository.tudelft.nl/v...2-a089-6d5cf18ec4a0/

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