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Psychiatry's catastrophic blindness and what to do about it

 

Members of PACEsConnection, intimately exposed to the pandemic of interpersonal violence, must be especially sensitive to contemporary medicine’s shortcomings. All of us spend most of the time coping. If we are victims of violence or abuse we search for the path towards personal strength, integrity and resilience. If we are therapists we accumulate strategies and tactics to help rebuild shattered souls—one at a time. Few of us have the time, the energy or the interest to explore larger issues of context, culture, policy and tradition.

This post describes a major shortcoming in traditional medical psychiatry which greatly impairs understanding and treatment of the victims of violence—especially child abuse and neglect. The discussion here should be of interest to all members of PACEsConnection. It details a “structural prejudice” which denies and belittles the effects of interpersonal violence, thus retarding understanding and therapeutic progress. This is a wakeup call for all of us to become involved in influencing policy and culture on the broadest scale.

While the House of Medicine sits proudly on a foundation of science, compassion, and efficacy, its construction has a long history of misdirected efforts, rigid dogmatic traditions, and culturally motivated disrespect for important humane values related to race, ethnicity and class. At the present time our community is being especially harmed by the attitudes and dogmas of medical psychiatry that influence the rest of medicine. For generations, clinical understanding of mental illness has been constrained by the symptom complexes described in the Diagnostic and Statistical Manual of the American Psychiatric Association (DSM). In fact, in 2009 the National Institute on Mental Health (NIMH) instituted the Research Domain Criteria (RDoC) framework for mental illness research funding as an alternative to the inadequacies of the DSM model. In RDoC, psychiatric illnesses are not defined as discrete categories, but instead as specific behavioral dysfunctions irrespective of DSM diagnostic categories.

This approach was taken because NIMH recognized two primary weaknesses in the DSM: (1) the same symptoms occur in very different DSM defined disease states; and (2) DSM criteria lack grounding in the underlying biological causes of mental illness. RDoC was intended to provide an improved basis for understanding psychiatric pathophysiology and treatment. This reformulation is extremely important for the study and treatment of child abuse and neglect trauma, because in the intervening dozen years there has been no change in psychiatry’s approach or in the DSM.

The DSM-5 attends to child maltreatment trauma only at the end of the volume after defining the accepted diagnostic categories for various mental illnesses, based on symptom complexes.  On page 715, there is a brief section called “Other Conditions That May Be as Focus of Clinical Attention.” It states that the conditions listed there merely affect mental disorders; they are not mental disorders themselves; and they cannot be treated as mental disorders. Thus designated by the DSM-5 coding system, they are not reimbursable by insurance companies. Conditions relegated to this section include Child Physical Abuse, Child Sexual Abuse, Parent-Child Relational Problems, Child Affected by Parental Relationship Distress, Child Psychological Abuse, Spousal Violence, and others. Thus the presence of any of these conditions is rarely specifically coded in a patient’s medical record. This presents a major problem to clinicians who study and treat the effects of child abuse trauma.

We all know adults with a history of abuse who have lived unhappy lives of maladaptive or dysfunctional behaviors that are their symptomatic responses to their trauma rather than a DSM defined mental illness. Seeking psychiatric help, many have been given different formal DSM diagnoses together or in serial over time along with multiple courses of ineffective medications, often complicated by side effects, as their symptoms evolve. Some are dosed with polypharmacy in an attempt to control their behavior without therapeutic benefit. Conversely, some traditional DSM diagnoses, for example, dissociative disorder and borderline personality disorder occur primarily, if not only, in the context of severe child maltreatment trauma. Historically, because of the absence of a DSM category for child maltreatment trauma, certain syndromes, for example, completed or attempted suicide, have been evaluated without attention to a history of child abuse trauma. In other circumstances, for instance, the evaluation of pharmaceutical treatment efficacy for depression or anxiety, the absence of attention to a history of child maltreatment trauma as a confounding or comorbid factor negates the validity of the research.

At the same time, medical psychiatry has placed increasing emphasis on pharmacotherapy and paid little attention to the many nuanced behavioral treatment modalities developed by non-medical therapists. There is good data on how many adults with a history of significant maltreatment turn to drugs or alcohol to manage their distress, but there are no studies of how many alcoholics or heroin addicts have been abused as children. In sum, the DSM paradigm has been a barrier to insight and understanding the mental distress of those who have experienced trauma from abuse or neglect. This impaired perspective impacts all of medical care that generally overlooks the lifelong physical, as well as mental, harms caused by child maltreatment trauma.

Recently, we published in a peer-reviewed professional journal a major paper comprehensively analyzing these problems, as well as pointing out, that abused patients have measurable genetic, genomic, neuro-anatomic, hormonal, and inflammatory changes. We lay out a comprehensive, evidence-based discussion on why a major rethinking and reformulation of the DSM is mandatory. The paper is attached to these introductory comments. Please take the time to read it. (The supplemental essays are material as well.) The PACEs Connection community has a special interest in this paper as it is designed to provide leverage for improving the system and providing better care. Your comments, criticisms, and further insights will be appreciated. I invite, and it is important, for all participants in PACEs Connection to join in to help promote the suggested changes.

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Thank you for sharing your thoughts and journal article, Dr. Gordon. You make a compelling argument for integrating a history of childhood maltreatment (CM) into physical and behavioral medicine models.  For so long physical and mental health have been separated.

(Page 3) Because maltreatment is also a major risk factor for a host of medical disorders including cancer as well as heart, liver, digestive, and respiratory disease [79–81], one can argue that a maltreatment history should be an essential part of everyone’s medical history.

(Page 5)  In addition, being able to specifically diagnose patients with post CM disorders will facilitate identification of the complimentary state— resilience—and catalyze more research into that phenomenon. Heightened attention to CM-associated diagnoses will also better inform public policy and needs to be a critical component in the education and training of mental health professionals.

The medical ship does indeed turn slowly, however, your article provides additional fuel for turning the ship a bit more quickly.

Thank you,
Karen Clemmer

Thanks for the kind words. I look forward to working with PACEsConnections staff and members to motivate the psychiatry association to change the DSM.

Thank you for sharing your thoughts and journal article, Dr. Gordon. You make a compelling argument for integrating a history of childhood maltreatment (CM) into physical and behavioral medicine models.  For so long physical and mental health have been separated.

(Page 3) Because maltreatment is also a major risk factor for a host of medical disorders including cancer as well as heart, liver, digestive, and respiratory disease [79–81], one can argue that a maltreatment history should be an essential part of everyone’s medical history.

(Page 5)  In addition, being able to specifically diagnose patients with post CM disorders will facilitate identification of the complimentary state— resilience—and catalyze more research into that phenomenon. Heightened attention to CM-associated diagnoses will also better inform public policy and needs to be a critical component in the education and training of mental health professionals.

The medical ship does indeed turn slowly, however, your article provides additional fuel for turning the ship a bit more quickly.

Thank you,
Karen Clemmer

I worked on the only 'Patient-Governed Ward' at our State Hospital late 1979-80. We had a Family Physician assigned in lieu of a Psychiatrist. The family doc directed that a patient- a former school teacher who had trouble teaching a sex-ed curriculum item just before she was hospitalized-not have unsupervised visits with her father-(who had sexually abused her during here childhood). Apparently the family doc didn't concur with the DSM about Incest.

Turning the ship of medicine takes a long time and much energy. Thanks for your insight and support.

I don't remember which book I read quoting the DSM in the 1980's " Incest will not impact the victims life. It will prepare them for the life they about to live." Their change is slow.

I believe ACEs represents the protest against the conformity to a life we are lead to believe is ours.

I worked on the only 'Patient-Governed Ward' at our State Hospital late 1979-80. We had a Family Physician assigned in lieu of a Psychiatrist. The family doc directed that a patient- a former school teacher who had trouble teaching a sex-ed curriculum item just before she was hospitalized-not have unsupervised visits with her father-(who had sexually abused her during here childhood). Apparently the family doc didn't concur with the DSM about Incest.

A part of the book notes that policies take a couple of decades to be put into place, with the implication that policies that aren't considered for that long, such as the policies behind our broken child welfare system were put together in haste, to the detriment of many.

THANK YOU for your note on the book,  you might find some supportive commentary by the "Bioloogical Anthropologists, too> Jane!

Last edited by Robert Olcott

A part of the book notes that policies take a couple of decades to be put into place, with the implication that policies that aren't considered for that long, such as the policies behind our broken child welfare system were put together in haste, to the detriment of many.

Maybe not!! At your suggestion, Jeoff, I'm reading Abusive Policies by Mical Raz. AMAZING book! I just started Chapter 4, so haven't looked at her suggestions on how to fix CPS.

AH yes! We are all a little wiser if we pay attention to history!

It was surprising to me that President Wilson, seeking favor with newly empowered suffragettes, twice passed child labor laws, but had then ruled unconstitutional by the US Supreme Court twice! Prohibitions and limitations on child labor did not become law until 1938 under FDR.

Maybe not!! At your suggestion, Jeoff, I'm reading Abusive Policies by Mical Raz. AMAZING book! I just started Chapter 4, so haven't looked at her suggestions on how to fix CPS.

I was just on an ambulance call where a 7 year old was semi conscious. What had happened was an over load of the child's system from turmoil at the dinner table. An argument pursued and one of the parents left the house in anger. The child simply checked out. As I tried to explain childhood maltreatment to one of the parents, I received the response "There is no right or wrong way to parent."

Time for a CPS or DPH referral!

     I remember when a Family Practice Resident Physician told me that our local Blue Cross/Blue Shield Board of Directors had voted to lower the Per Patient/Per Bed/Per Day Reimbursement Rate for the one hospital hosting the Family Practice Residency program $2-$3 LESS THAN ALL the rest of the hospitals affiliated with the medical school in the BC/BS area, just about the time the National Health Planning and Resources Development Act of 1974 (Public Law 93-641) took effect, with it's mandate of "Consumer Majorities".

     I subsequently moved to another state, where I later 'Re-Upped' for another term in VISTA/Americorps where I was tasked with ensuring the provisions for informed/empowered "Consumer Majorities" (specifically: Low-Income and Elderly [Health Care Consumers] under the 1974 National Health Planning...Act - - where you couldn't be a 'Consumer representative' if more than 10% of your income came from a health related source, or if you were married to a provider, or if you were an 'Indirect Provider'-such as an EMT of Dental Hygienist.....until the Reagan administration 'gutted' the funding for that type of 'government-mandated Citizen Participation'. Before that occurred, we were fortunate enough to have also had [federal] Regional Technical Assistance centers, such as the Western Center for Health Planning- which availed a printed guide: "Is Your Health Plan Readable?"-offering strategies for "Readability Analysis" of Newsletters and other publications.

     As an adjunct to Jeoffrey Gordon's post, perhaps we need to reinstate those 'Consumer Majorities' on a national scale, considering the World Health Organization's development of the 'WHO ACE International Questionnaire' - which it used for its study of the World's Healthiest Children [the USA ranked only 25th]...the Netherlands, with its 'Resilience Building' famed story of 'The Dutch Boy who put his finger in the Dike' and prevented flooding' was number one.

Well said. Really what we need as all members of PACEsConnection to work together as a community to impact public policy concerning effective parenting, interpersonal violence and child maltreatment!

"The magnitude of the problem is so enormous and treatment approaches are so difficult and costly that you can spend the rest of your life becoming the next Mother Teresa or Albert Schweitzer and you'll be so busy helping people that you'll never notice you're just nibbling at the edges of the problem leaving the vast bulk unrecognized and untouched.  So if anything meaningful is to come out of this it's going to be coming out of what we call primary prevention..."  Dr. Vincent Felitti

****************************************************************************

"If you were to ask me what my thoughts are on the most effective public health advance that I can think of in current times, I would say to figure out how to improve parenting skills across the nation."  Dr. Vincent Felitti

****************************************************************************

“If we could somehow end child abuse and neglect, the eight hundred pages of the DSM...would be shrunk to a pamphlet in two generations.”  Dr. John Briere

I was just on an ambulance call where a 7 year old was semi conscious. What had happened was an over load of the child's system from turmoil at the dinner table. An argument pursued and one of the parents left the house in anger. The child simply checked out. As I tried to explain childhood maltreatment to one of the parents, I received the response "There is no right or wrong way to parent." 

With regard to 'Parenting Education', our local [Connecticut River valley of the twin-state Vt./N.H.] newspaper "Valley News" publishes a "Parenting" supplement on a quarterly basis- which may be available on their website (www.vnews.com).

     I remember when a Family Practice Resident Physician told me that our local Blue Cross/Blue Shield Board of Directors had voted to lower the Per Patient/Per Bed/Per Day Reimbursement Rate for the one hospital hosting the Family Practice Residency program $2-$3 LESS THAN ALL the rest of the hospitals affiliated with the medical school in the BC/BS area, just about the time the National Health Planning and Resources Development Act of 1974 (Public Law 93-641) took effect, with it's mandate of "Consumer Majorities".

     I subsequently moved to another state, where I later 'Re-Upped' for another term in VISTA/Americorps where I was tasked with ensuring the provisions for informed/empowered "Consumer Majorities" (specifically: Low-Income and Elderly [Health Care Consumers] under the 1974 National Health Planning...Act - - where you couldn't be a 'Consumer representative' if more than 10% of your income came from a health related source, or if you were married to a provider, or if you were an 'Indirect Provider'-such as an EMT of Dental Hygienist.....until the Reagan administration 'gutted' the funding for that type of 'government-mandated Citizen Participation'. Before that occurred, we were fortunate enough to have also had [federal] Regional Technical Assistance centers, such as the Western Center for Health Planning- which availed a printed guide: "Is Your Health Plan Readable?"-offering strategies for "Readability Analysis" of Newsletters and other publications.

     As an adjunct to Jeoffrey Gordon's post, perhaps we need to reinstate those 'Consumer Majorities' on a national scale, considering the World Health Organization's development of the 'WHO ACE International Questionnaire' - which it used for its study of the World's Healthiest Children [the USA ranked only 25th]...the Netherlands, with its 'Resilience Building' famed story of 'The Dutch Boy who put his finger in the Dike' and prevented flooding' was number one.

Sorry I merely copied the email address you gave and pasted it into my browser. I did it again and it will not work. I look forward to chatting with you but do not know what to do. You can email  me directly at paradocs21@gmail.com. JBG

I don't remember which book I read quoting the DSM in the 1980's " Incest will not impact the victims life. It will prepare them for the life they about to live." Their change is slow.

I believe ACEs represents the protest against the conformity to a life we are lead to believe is ours.

Dr. Gordon...you wrote, "Parenting education is really, really important and could be very helpful, but inevitably it only reaches a relatively few families who need it."

Are you referring to conventional parenting education...the kind that happens in a classroom or office?  If you are you are absolutely correct.

I'm talking about a new kind of parenting education that reaches everyone, everywhere.

This new kind of parenting education doesn't exist yet...with one exception.

Please be so kind as to describe the exceptional approach to parenting education. If is working I am all for it. My preference is that I still thinks societal change will have more preventive impact - for example President Biden's child subsidy payments.

Dr. Gordon...you wrote, "Parenting education is really, really important and could be very helpful, but inevitably it only reaches a relatively few families who need it."

Are you referring to conventional parenting education...the kind that happens in a classroom or office?  If you are you are absolutely correct.

I'm talking about a new kind of parenting education that reaches everyone, everywhere.

This new kind of parenting education doesn't exist yet...with one exception.

I understand that socioeconomic factors play a role in unsupportive and harmful parenting.  I also know that unsupportive and harmful parenting happens in homes that aren't experiencing negative socioeconomic factors.                                                                                                                                                                                                                                         In light of the fact that the socioeconomic playing field has been unlevel for thousands of years I don't hold much hope it will change appreciably in the foreseeable future.

A new kind of parenting education, though, is doable right now.   

Last edited by David Dooley

What I don't understand is why the psychiatric community hasn't promoted a new kind of parenting education that reaches everyone, everywhere.

If we want to put an end to childhood trauma...especially unsupportive and harmful parenting, the answer isn't treatment...it's prevention. Perhaps national parenting education campaigns akin to the smoking and seatbelts campaigns of the past.  Perhaps national multi-media messaging that teaches parenting behaviors and practices generally recognized as supporting the healthy development of children.

It's like polio.  Polio wasn't eradicated by treatment.  It was eradicated by prevention...primary prevention.  A vaccine.  The psychiatric community needs to regard this new kind of parenting education as a vaccine that will prevent childhood trauma ten, twenty, fifty years down the road.

I do not know what your experience has been, but speaking as a family doc with 50 years in the House of Medicine, in my opinion you have some crucial misperceptions:

(1) Medicine provides only 20% of the contribution toward health. In preventing child maltreatment, medicine, including psychiatry, has little to offer. Socioeconomic factors such as absolute poverty, unaffordable housing, absence of jobs, unliveable wages, and hunger create the family stress which makes managing child energy impossible. Attention to these issues is where real prevention lies. These are cultural and public policy issues.

(2) Parenting education is really, really important and could be very helpful, but inevitably it only reaches a relatively few families who need it.

(3) The psychiatric profession is really dedicated and devoted to one on one therapy for people/families already in distress either with talk therapy  or pills and except for a few exceptions knows and cares nothing about prevention.

(4) Polio vaccines were an effective technology. The dynamics of child abuse do not lend themselves to any simple formulation or technology, so the analogy is faulty. As a matter of fact, it is because child maltreatment is a pathology so mixed up in socioeconomic factors, and simply  managed by pills or surgery,  that medicine is hesitant to get involved at all.

What I don't understand is why the psychiatric community hasn't promoted a new kind of parenting education that reaches everyone, everywhere.

If we want to put an end to childhood trauma...especially unsupportive and harmful parenting, the answer isn't treatment...it's prevention. Perhaps national parenting education campaigns akin to the smoking and seatbelts campaigns of the past.  Perhaps national multi-media messaging that teaches parenting behaviors and practices generally recognized as supporting the healthy development of children.

It's like polio.  Polio wasn't eradicated by treatment.  It was eradicated by prevention...primary prevention.  A vaccine.  The psychiatric community needs to regard this new kind of parenting education as a vaccine that will prevent childhood trauma ten, twenty, fifty years down the road.

Robert, yeah, I remember van der Kolk describing his futile efforts. And while I'm trying to be productive and not set off a revolt against our psychiatry friends, I recall "The Body Keeps The Score" also telling how the major psychiatric textbook of the time in the early '70s explaining that "incest" happened in something like 1 in 100,000 girls, and even (it's hard for me to even type this) that there was a theory that the incest might even be helpful in the development of that girl. I'm grateful that we've come a long way from that belief, though, as this thread is addressing, we have a long way to go.

Your frustrating experience in pursuing non-traditional therapies, and having insurance not cover, is a whole other topic we can tackle, once we get our psychiatry issue taken care of. I'm encouraged that in California, it's now a state law that all insurance have to reimburse for ACEs screening. Hopefully this momentum builds, and they'll start covering the somatic therapies, including the ones you mentioned, as well as interventions, such as neurofeedback,

As a primary care physician, I share this frustration with the collective of our psychiatry colleagues not embracing ACEs science, and rigidly sticking to the blueprint of considering medications the main intervention that is needed. That being said, using a trauma-informed lens, I get the reasons why they're seemingly stuck in the mud. I'm actually disappointed with my fellow physicians in general for being so slow to "see the light" regarding ACEs, but again, I get it. After a couple years of pulling my hair out with frustration at the rest of the medical world not acknowledging the critical importance of ACEs, I've reached a level of acceptance that this is going to take a while; I've set low expectations, and will just keep talking about ACEs to any doc that will listen. I appreciate physician leaders, like Nadine Burke Harris and her team, who are leading the charge and making progress. I think one potentially very helpful way to move the needle is to get major medical journals, like NEJM and JAMA, to publish more articles on ACEs issues. Pediatrics (the journal) has been decent, in this regard.

And oh yeah, the DSM needs to go far, far away. It was a nice try, and I appreciate it's authors doing the best they could with the tools and knowledge they had, but it's clearly counterproductive now.

Mike Flaningam - Bessel van der Kolk tried to 'expand the DSM-5, with his proposed "C/PTSD" diagnostic construct in 2005, but the APA rejected it, if i'm not mistaken. But the historic factors:                                                                                                                              When the Flexner Report recommended the US and Canada adopt the German 'Male-Only' model of 'Medical Education, 95% of the babies born in the USA were delivered by Female Midwives. I wonder who wrote the medical textbooks on Prenatal and Perinatal care ? ?

Last edited by Robert Olcott

When a job I held, which came with both Health Insurance and a 'Medical Savings Account', was ''at risk", I availed myself of free 'energy balancing' provided by one board member who was also a Reiki practitioner. She referred me to 'Somatic Experiencing' but BC/BS which I hadn't realized also administered the 'Medical Savings Account' would not even reimburse my 60 mile one way mileage, much less the cost, so I wasn't able to continue. Still continuing my 'Somatic-Experiencing' quest, I learned of a Family Practice Medical Clinic 60 miles in the other direction, that had a staff member with the highest 'Somatic-Experiencing Certification' at the time. Now I just don't have transportation, and Medicare A & B doesn't seem to cover what's available to me in proximate locations.

Totally agree.  I'm a primary care internist who teaches about ACEs/trauma and adult health and was surprised by the lack of knowledge on this topic I saw in psychiatrists, especially in the past.  Seems to be getting a bit better.  But a long way to go, as Dr. Flaningam says. Would love to see just one article on ACEs in the Annals of Internal Medicine...hasn't happened yet.

As a primary care physician, I share this frustration with the collective of our psychiatry colleagues not embracing ACEs science, and rigidly sticking to the blueprint of considering medications the main intervention that is needed. That being said, using a trauma-informed lens, I get the reasons why they're seemingly stuck in the mud. I'm actually disappointed with my fellow physicians in general for being so slow to "see the light" regarding ACEs, but again, I get it. After a couple years of pulling my hair out with frustration at the rest of the medical world not acknowledging the critical importance of ACEs, I've reached a level of acceptance that this is going to take a while; I've set low expectations, and will just keep talking about ACEs to any doc that will listen. I appreciate physician leaders, like Nadine Burke Harris and her team, who are leading the charge and making progress. I think one potentially very helpful way to move the needle is to get major medical journals, like NEJM and JAMA, to publish more articles on ACEs issues. Pediatrics (the journal) has been decent, in this regard.

And oh yeah, the DSM needs to go far, far away. It was a nice try, and I appreciate it's authors doing the best they could with the tools and knowledge they had, but it's clearly counterproductive now.

Strong statement. I agree and wonder if there is a lack of leadership by the psychiatric-mental health physician folks. I really don't hear that voice. In California, the voice is one of a pediatrician . . .which is wonderful. But it would probably be even better if the psychiatrists would become more visible as thought leaders promoting current best practices. In my community of Oregon's State Capital (Marion County), psychiatrist Dr. Satya Chandragiri has stepped up to a leadership role as a member of the school board for the second-largest district in the state. He has the scars to prove it. But he has been joined by zero physicians, where are the psychiatrists?

Last edited by Michael J Polacek

"The magnitude of the problem is so enormous and treatment approaches are so difficult and costly that you can spend the rest of your life becoming the next Mother Teresa or Albert Schweitzer and you'll be so busy helping people that you'll never notice you're just nibbling at the edges of the problem leaving the vast bulk unrecognized and untouched.  So if anything meaningful is to come out of this it's going to be coming out of what we call primary prevention..."  Dr. Vincent Felitti

****************************************************************************

"If you were to ask me what my thoughts are on the most effective public health advance that I can think of in current times, I would say to figure out how to improve parenting skills across the nation."  Dr. Vincent Felitti

****************************************************************************

“If we could somehow end child abuse and neglect, the eight hundred pages of the DSM...would be shrunk to a pamphlet in two generations.”  Dr. John Briere

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