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Infusionarium Aims to Take Trauma Out of Chemotherapy for Young [Well.Blogs.NYTimes.com]

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Nick Meza, 18, recently had another five-day round of chemotherapy at the outpatient clinic here at Children’s Hospital of Orange County. Usually those days drag for Nick, an Eagle Scout with a flashing grin, a hunger for conversation, and acute lymphoblastic leukemia.

Like most patients who get intravenous medication at a pediatric clinic, Nick typically receives treatment in a small, curtained cubicle with hospital-green walls, outdated video games that are often broken, tiny TV monitors, and dividers that don’t muffle hallway clatter or the wails of a child in the next cubicle.

But now Nick, whose baseball cap doesn’t disguise his gleaming bald head, emerges from his cubicle, holding his IV pole. He saunters down the hall toward velvety black curtains. Parting them, he slips inside and eases into a reclining chair.

Adrenalized thumping music fills the makeshift space, called the Infusionarium. Roiling close-ups of extreme sports spring across four high-definition monitors, each five-feet tall: skateboarding stunts, parachute-skiing, kayaking over waterfalls.

Nick is entranced. After a while there’s a beep on his IV: The infusion is finished. He is oblivious. “That’s crazy!” Nick shouts at racecars careening across the monitors. “This is awesome!”

 

[For more of this story, written by Jan Hoffman, go to http://well.blogs.nytimes.com/...-infusionarium/?_r=5]

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The heme/onc ward is a tough place to be. I had done cancer research before medical school and in medical school -- I wanted to be a pediatric hematologist/oncologist. I was so knowledgable about the latest treatment even ahead of the fellows on our team when there was an article published on a cure for "hairy cell leukemia" in NEJM during my rotation, I knew all about it. Our lab was researching those exact same drugs for the exact same thing.  

 

But the 7 yr old who came in with the central line.... fever and neutropenia.... I am the medical student assigned to the case.....He begs me...... "Please don't take the bandages off my line". 


My heart is breaking.... I cannot.... I don't ....it is 3 AM.... What am I going to do?.. Pull out the line myself? no only the surgeons can do that so I don't even look.... (Yep at Michigan, I could have gotten in trouble for not being the tough in my head 'shut up kid, I gotta look my grade depends on it student and possibly my fellowship).

 

 

But I didn't look.... knowing in the morning they could hang me or have compassion for me too....who knows... i have to decide right now....

 

However the next morning the team knows (and so do I)  we gotta look.....We look.... it is bad-----REALLY BAD----- .... a large red track along the line under the skin..........

 

I always felt torn.....but I didn't do anything wrong..... we wouldn't have done anything differently... and a young child begging me please don't hurt me........ so I didn't............

 

Heme/Onc is often terrible........

 

But what POG and CCG (pediatric oncology group and children's cancer group did) was awesome... They pooled their knowledge about the best treatments and now get the best results in children's cancer cure. Something the adult onc world has yet to learn.....

 

Can we pool our knowledge of ACEs (the greatest CANCER i know) ? I think so... Folks just need to see ACEs as the cancer that it is and see the pain that it causes just like that 7 year old showed to me... Then we can make the leaps and strides in treatment and cure that we seek!!!!!!!!!!!

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