Skip to main content

Dr.Felitti's Suggestions for High ACE Scorers

You aren’t blurry eyed or reading that wrong. It’s not weeks or months but YEARS.

YEARS.photo 4

Which is why I’ve been been obsessed with this ACE topic for a while now. I’m happy and healthy now, at midlife, I want to live a LONG life!

 

So, I’ve been carrying around this grim statistic and wondering,

What’s a high ACE-scoring adult to do? 

I Googled and researched and figured with such a big study, (over 17,000 people) done in the late 1990’s (you know, not last week), there must be some great remedies, cures, treatments and plans to reduce that alarming health prediction.

 

I haven’t found anything yet.

 

So my old reporter stuff was like… “Wait, what does the guy himself who originated this study think?”

 

Dr. Felitti has talked to thousands and thousands and been thinking about this for a few decades. What does he think.

 

So I wrote to ask him and he graciously answered! 

 

I’m guessing that Dr. Felitti gets a bazillion emails and calls. I wasn't expecting a response.

But I got one. He gave me book suggestions and this and the AcesTooHigh website.

 

Which was nice.

And useful.

And I’m going to get the one book he recommended that I don't have. 

 

But in a polite as way as possible I said: 19 years early. It’s literally life and death. There's got to be more than books and websites.

 

I can’t be the first one who is asking, feeling or thinking this!

 

Plus, my friend Margaret and I were giving a talk about the ACE study and test to people who had never heard of it. How, in good conscience could we share early mortality facts without also sharing hope.

That seemed sort of mean.

 

Dr. Felitti shared the two techniques that he believes are effective and relatively inexpensive over the long-term because they work well and cover so much ground.

 

I’ve not used either one for developmental trauma so I'm not "selling" them with a personal agenda - just sharing. And I did let Dr. Felitti know I'd be sharing the info. Because this isn't the kind of stuff that needs to be kept secret. 

 

File this under let’s help each other get and stay happy, healthy and alive.

 

Chidhood shouldn’t make adults fat, sick and give us early mortality. But, that’s what is happening now so we’ve got to stop waiting for parents or doctors to advocate for our protect us.

 

They didn’t.

We’re adults now. We can. Sometimes we even have to advocate to and with and for them. Most importantly, let's make it happen for ourselves and each other. 

There are lots of us. Maybe less than 15% have scores of 6 or more but if 6 or more reduce by 19 years on average no number of ACE's are actually "good for" anyone. If 2/3 of all adults have at least a score of 1, this matters to lots of people. Or should.

Sorry to bury the lead: Here are Dr. Vincent Felitti’s suggestions from our March 2015 correspondence.

  1. EMDR (Eye-Movement Desensitization & Reprocessing
  2. Ericksonian Hypnotherapy
  3. Websites: (Founder/Editor, Jane Ellen Stevens) www.acestoohigh.com & www.acesconnections
  4. Books
    1. The Body Keeps Score,Brain, Mind & Body in the Healing of Trauma, Bessel van der Kolk , MD.
    2. Scared Sick: The Role of Childhood Trauma in Adult Disease, Robin Karr-Morse
    3. Jane Ellen Stevens, forthcoming 2015

originally published on www.healwritenow.com

Attachments

Add Comment

Comments (12)

Newest · Oldest · Popular

There are a couple of good books about what people with high ACE scores can do, both by science writer Donna Jackson Nakazawa. The Last Best Cure was published in 2013 -- it's about Donna's personal journey in taking a new approach with her decades-long battle with autoimmune diseases, after a physician at Johns Hopkins asked her if anything in her childhood could have contributed to her health.

Her second book -- Childhood Disrupted: How Your Biography Becomes Your Biology -- will be out in July. It could be described as a self-help book about ACEs. Here's the flap copy:

 

What doesn’t kill you makes you stronger? Not quite. Far more often, the opposite is true. Over the past decade, a group of doctors and scientists has discovered that childhood trauma leads to lifelong struggles with mental and physical health. Early chronic stressors shape our biology in ways that pre-determine our adult health. In other words, your biography becomes your biology.

 

Award-winning science journalist and author Donna Jackson Nakazawa started investigating the relationship between childhood adversity and adult physical health after spending more than a dozen years suffering from several life-limiting autoimmune illnesses. In her search to understand chronic illness, she came across the growing body of science based on a public health research study, the Adverse Childhood Experiences Study. The ACE Study shows an irrefutable scientific link between many types of childhood adversity and the adult onset of physical disease and mental health disorders.

 

In this groundbreaking work that beautifully blends science and personal stories, Nakazawa shines a light on how the emotional trauma we suffer as children not only shapes our emotional lives as adults, it also affects our physical health, longevity, and overall wellbeing. Scientists now know on a bio-chemical level exactly how parents’ chronic fights, divorce, death in the family, being bullied or hazed, and growing up with a hypercritical, alcoholic, or mentally ill parent can leave permanent, physical “fingerprints” on our brains. These traumas can lead to life-altering adult illnesses such as heart disease, cancer, autoimmune disease, fibromyalgia and depression. It also lays the groundwork for how we relate to others, how successful our love relationships will be and how well we will nurture and raise our own children. Donna Jackson Nakazawa shares stories from people who have recognized and overcome their adverse experiences, shows why some children are more immune to stress than others, and explains why women are at particular risk.

 

And she also lays out a path for healing. Childhood Disrupted explains how you can reset your biology—and help your loved ones find ways to heal. Trailblazing in its research, inspiring in its clarity, Childhood Disrupted shows how you or someone you know may have become locked in pain—and what you can do to recover.

 

Donna Jackson Nakazawa is an award-winning science journalist, public speaker, and author of The Last Best Cure, in which she chronicled her yearlong journey to health, and The Autoimmune Epidemic, an investigation into the reasons behind today’s rising rates of autoimmune diseases. She is also the author of Does Anybody Else Look Like Me?, as well as a contributor to the Andrew Weil Integrative Medicine Library book Integrative Gastroenterology?. Ms. Nakazawa lectures nationwide. Learn more at DonnaJacksonNakazawa.com.

 

Likewise, I have had some good early results being EMDR'd.  I did not have it extensively enough to opine on its ultimate effect on my individual circumstances but as we know, different 'effective' therapies can have drastically different results when practiced by different practitioners with different people.  The sweet spot, in my view, is where the clinician is not so specialized on, or enamored with, one type of intervention but is well-practiced with a variety of tools that they bring to bear after careful observation and consideration of the clients circumstances.
 
...edwin

 

 

Originally Posted by Tina Marie Hahn, MD:
I did EMDR in 2000. It is not so good for severe early onset developmental trauma. It didn't help me but it was new then but I cannot aerate out discrete episodes to tackle w/EMDR because 17 yrs including in the wound were developmentally toxic... I am really leaning towards Neurofeedback but there are no practitioners where I live but I have read several books and could attend Ed Hamlins training in Ashville in May and go to the BTC in May and have a day w/Seburn. It is so unfortunate that this form of therapy has not been studied expensively. I have this really strong sense it had tremendous potential for my form of DTD... What Sri you all think?

 

Originally Posted by Tina Marie Hahn, MD:
Tina, Sebern Fisher's book is fabulous and I too have good and positive feelings about Neurofeedback but my insurance doesn't cover it and it's expensive. Some people find clinical trials and can get covered that way. I wish it were more affordable and/or covered by insurance. It sounds like a serious investment is needed in the beginning (time and money) to even assess if it works. I wonder if there is anything similar that helps. Fisher said some biofeedback is covered for the treatment of migraines (not uncommon for those with developmental trauma) and so that's a way for some to get something. I have little experiential knowing about EMDR. So far, yoga and free-writing and guided imagery are the best things I've found for changing baseline of fear. Warmly, Cissy
 
 
I did EMDR in 2000. It is not so good for severe early onset developmental trauma. It didn't help me but it was new then but I cannot aerate out discrete episodes to tackle w/EMDR because 17 yrs including in the wound were developmentally toxic... I am really leaning towards Neurofeedback but there are no practitioners where I live but I have read several books and could attend Ed Hamlins training in Ashville in May and go to the BTC in May and have a day w/Seburn. It is so unfortunate that this form of therapy has not been studied expensively. I have this really strong sense it had tremendous potential for my form of DTD... What Sri you all think?

 

I did EMDR in 2000. It is not so good for severe early onset developmental trauma. It didn't help me but it was new then but I cannot aerate out discrete episodes to tackle w/EMDR because 17 yrs including in the wound were developmentally toxic... I am really leaning towards Neurofeedback but there are no practitioners where I live but I have read several books and could attend Ed Hamlins training in Ashville in May and go to the BTC in May and have a day w/Seburn. It is so unfortunate that this form of therapy has not been studied expensively. I have this really strong sense it had tremendous potential for my form of DTD... What Sri you all think?
Edwin,
The only cure is prevention but that is sort of unsatisfying for those of us with high ACE scores. I've heard Dr. Felitti say there's his observations/impressions that those who have "done work" seem to do better, but no studies. And what "work" helps vs. makes it worse is also trick/interesting.
 
I have to think all of the things people in the live long blue zones stuff will help as well as all things that assure the body, in the now, it's safe and can relax and stop firing off fear like pinballs banging up the internal organs.
And let's keep defying the statistics as much as possible and getting old well with high ACE scores! 
Cissy

Thanks Christine, for reaching out to Dr. Felitti and posting his response.  As a 62 year old 7+ACE'er, if 19 years have already been chopped off of my life expectancy, then I suppose I would be the equivalent of 81 years old in ACES age....or something like that...Math has never been my strong suit.  Perhaps someone so inclined might create an equivalent to 'dog years' for folks high on the ACES spectrum.

    All kidding aside, about a decade or so ago, the good Dr. Felitti was posed a similar query after his presentation at an event I attended, except then he was asked for his primary recommendation as to what could be done in response to the findings in the study.  Without hesitation he said, "Establish a universal  parenting education program."  The Obama administration's efforts to support home visiting programs along the lines of the Nurse Family Partnership model was a good start, although the current state of national party politics makes it hard to believe that something like this could be brought up to the scale that is needed.

    As for adults like me, greater attention to the resilience factors have the potential to decrease the ACES-dog years formula.  

   In the meantime, I can take solace that at 81-ACES years old, I don't look a day over 62.  {and as Fernando says, https://youtu.be/J0RTD7250II}

....edwin

 

The dog years made me laugh as well. It's awful and funny at the same time. It made me wonder if there some statistic for early mortality years by number of ACE scores.
 
Originally Posted by Tina Marie Hahn, MD:

Edwin, Love your dog-year ACEs!!! Made me laugh!!!

 

Jane,
I put it in the actual blog post now so there's no need to open the attachment.
Thanks for the suggestion.
cissy

Hi, Cissy: The attachment won't open for me. Do you mind incorporating what he said into your blog post?

Thanks!

Cheers, Jane

 

Thanks Christine, for reaching out to Dr. Felitti and posting his response.  As a 62 year old 7+ACE'er, if 19 years have already been chopped off of my life expectancy, then I suppose I would be the equivalent of 81 years old in ACES age....or something like that...Math has never been my strong suit.  Perhaps someone so inclined might create an equivalent to 'dog years' for folks high on the ACES spectrum.

    All kidding aside, about a decade or so ago, the good Dr. Felitti was posed a similar query after his presentation at an event I attended, except then he was asked for his primary recommendation as to what could be done in response to the findings in the study.  Without hesitation he said, "Establish a universal  parenting education program."  The Obama administration's efforts to support home visiting programs along the lines of the Nurse Family Partnership model was a good start, although the current state of national party politics makes it hard to believe that something like this could be brought up to the scale that is needed.

    As for adults like me, greater attention to the resilience factors have the potential to decrease the ACES-dog years formula.  

   In the meantime, I can take solace that at 81-ACES years old, I don't look a day over 62.  {and as Fernando says, https://youtu.be/J0RTD7250II}

....edwin

Post
Copyright © 2023, PACEsConnection. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×