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NCFASD Informed Conference

 

Target Audience:  This project has been planned for medical professionals (physicians, mental health professionals, and allied health), parents, provider agencies, MCO/LMEs, educators, attorneys, and other legal system professionals.

Program Description This virtual conference will discuss how exposure to alcohol is the leading cause of intellectual and other developmental disabilities in the US and results in a variety of developmental disability diagnoses collectively referred to as Fetal Alcohol Spectrum Disorder. About 6,000 children (or 1 in 20 children) are born annually in North Carolina with Fetal Alcohol Spectrum Disorder. To live more successfully in the community, individuals exposed to alcohol in utero must be diagnosed as early as possible. Unfortunately; only about 10% are diagnosed correctly, instead these individuals receive a plethora of mental health diagnoses (Chasnoff, 2015, Pediatrics). The interventions for these mental health diagnoses are usually not helpful and, in some cases, harmful, because the underlying brain damage is not considered when the behaviors are treated. Special strategies such as consistency, a structured environment, supervision, and the understanding that it is not that the individual is refusing to do something, but rather than s/he can’t do what is being asked (Malbin, 2021). In addition, for those with a diagnosed FASD, accommodations in school and evidence-based treatment strategies can lead to the avoidance of negative outcomes associated with this disability. FASD is a lifelong brain-based disability which can cause school disruption, victimization, deficits in communication, difficulties in independent living, mental health and substance abuse challenges, lack of job stability, and often involvement in the criminal justice system. FASD cannot be cured.

Objectives:  Upon completion of this workshop, participants will be able to: • Discuss the devastating effects of alcohol exposure in utero. • Recognize and dispel different myths surrounding FASD. • Understand the potential for legal involvement for those with FASD.

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Thanks for posting!

Fetal Alcohol Spectrum Disorders are so much more prevalent than people think. They are permanent. And they are PREVENTABLE. There is no known safe amount of alcohol, or time during pregnancy, to drink. Women who have a period and are having sex and drinking are at risk of conceiving an infant who will bear the lifetime consequences of fetal alcohol exposure. Children with FASD are often labeled as learning disabled, having attention deficit disorder, or being oppositionally defiant. I have long advocated for a warning label to go on tampons to help educate women about this!

It's tragic. Many children with FASD end up in the foster care system. There is no way to undo the structural and functional damage to the brain due to exposure from the mother's alcohol exposure. As a founding member of a group (now defunct) in Georgia to help prevent FASD, and as someone who worked in the developmental disabilities community for several years, I am acutely aware of the damage done by maternal alcohol consumption. I know one woman who drank heavily while pregnant whose daughter, now a smart and outgoing teenager, is fine. But I have seen many more people, even three generations of women affected by FASD, whose potential has been snuffed out by this preventable developmental disability.

So glad you posted this, Kelly! 

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